Gabby’s Wonderful World
As my life unfolded in a way that I never expected it to, our mission at Gabby’s Wonderful World Foundation is to:
- Bring awareness to the world about Neutral Lipid Storage Disease with Myopathy (NLSD-M).
- End isolation and bring individuals together when diagnosed with a rare disease by providing the emotional support to navigate this new way of life.
- Find a treatment for a disease with no cure, even if that treatment helps one individual.
A SEARCH FOR A CURE. Day by day. Little by little. For those who are one in a million…
It is time for pharmaceutical companies to make a push in developing a treatment or therapy for us. We understand that the technology and research knowledge is there but there are financial hurdles to overcome. Together as a foundation, we will help to surpass those financial hurdles.
Even though we are a small population that are affected by this rare disease, we should be given a fighting chance. Every life matters. There could be people who have this disease who are currently being misdiagnosed. These therapies we are trying to push for will not only help the people suffering now, but the people who will be diagnosed with this disease in the future. There needs to be a push to develop therapies with the potential to improve our lives.
It is time for us as a global community and as patients with NLSD-M to make the impossible possible. I am holding out for a miracle and I know everyone suffering with NLSD-M is waiting for a miracle too. I know that we can make this happen together in pursuit of a Yasashii world; Always friendly, always gentle, always kind.
Gabby’s Wonderful World (GWW NLSDM Corp.) is a 501(c)(3) nonprofit organization. All donations from within the US are tax- deductible.
Learn more about Neutral Lipid Storage Disease with Myopathy (NLSD-M) here.
